Next Two Months and Persons with Disabilities!

Sylvester Katontonka, Mental Health Users Network of Zambia - Coordinator

Our great and vibrant leader, Mr. Michael Sata has been put to rest. MHSRIP!

He obviously leaves sorrow, grief, cry and a feeling of loss in everyone. He leaves a very dark cloud above all of us which will take time to dissolve. He leaves empty space. Peace is with us as linger around the empty space.

Mr. Michael Sata has created a gap. A gap that will cause suspicion, fear, doubt, uncertainty and of course name calling. Let us treat this gap as a peace builder. In order to fit in this peace we ourselves as individuals must immediately mutate into peace makers. Peace is with us!

Where are persons with disabilities in this gap? Persons with disabilities and their representative organisations must with immediate effect begin to preach peace. We have entered into a period of turbulence, volatility and political contest. Why should persons with disabilities begin to preach peace? Peace brings unity. Unity breeds development. Development moulds improved livelihood. Persons with disabilities want improved livelihood. Therefore, in preaching peace, organisations of persons with disabilities should come out and clearly be seen to be calling for leaders who will improve the livelihood of persons with disabilities.

Organisations of persons with disabilities should call for the quick launch of the National Policy on Disability and the National Social Protection Policy. The approval of these policies was expedited during President Sata, s reign. The political leaders who will be campaigning should be reminded that this is key for persons with disabilities. This will enhance the effective inclusion of persons with disabilities in community and national level development.

The political leaders should be reminded that persons with disabilities want the implementation of the recommendations that came out of a report on the Human Rights of Persons with Mental Health Issues mid-2014. The report made clear recommendations on improving the human rights of persons with mental health issues including women and children. The report is with government and was launched by the Mental Disability Advocacy Centre of Hungary in conjunction with Mental Health Users Network of Zambia.

The political leaders should be reminded to prioritise the implementation of the recommendations which were submitted to them by the Human Rights Watch on issues around Persons with Disabilities and HIV/Aids in Zambia. Health matter should be put as priority for persons with disabilities. The report is with government.

Persons with disabilities need access to land for development. This is an issue which the political leaders should promise persons with disabilities. Land is very difficult to acquire for persons with disabilities because of the exorbitant cost it fetches. Organisations of persons with disabilities should demand that land should will be put as priority as the leaders campaign.

Early Childhood Education is still a nightmare for children with disabilities. Developing an inclusive early childhood education system which will deliver quality education effectively to children with disabilities is key. Persons with disabilities should ask questions to the political leaders on whether they will consider children with disabilities. Children with disabilities should be seen to easily enroll in any school and participate fully and effectively on an equal basis with other children. Which political leader promises this? Check!
Creation of employment for youths and adults with disabilities should not be political rhetoric and policy mirage. Organisations of persons with disabilities should check out for real leaders offering systematic delivery of equal opportunities for youths and adults with disabilities.
Women with disabilities continue to suffer abuse, violence and exploitation. Which political leader promises to improve this matter? Check!
Organisations of persons with disabilities should check the political leaders against their understanding of the principles of the Convention on the Rights of Persons with Disabilities. This should now form part of their manifestoes or campaign messages. In order to have them commit themselves, persons with disabilities, through their representative organisations should sign social contracts with the key political parties. They should campaign on the basis of these social contracts. After elections, the leaders who will rise to the ‘throne’ should be checked against the social contract. What do you think about this?
This is the time to rise, persons with disabilities!

Wamundila Waliuya

Let’s do this!

Proposal to Honour His Excellence Mr. Michael Chilufya Sata

5 November, 2014

Hon Emerine Kabanshi MP

Minister of Community Development, Mother and Child Health,

Lusaka. 

Dear Honourable Minister,

Re: Proposal to Honour His Excellence Mr. Michael Chilufya Sata

We would like to deliver our heart-felt condolences to the government of the Republic of Zambia and more to the family of the late President. We further would like to propose to your Ministry to name the Ambassadorial Country Award on Disability being awarded by the African Disability Alliance to the government after our late President. We propose that the award be called the Michael Sata Ambassadoral Country Award on Disability. We feel this will be a big hour to our great President.

We observe the following:

i)             Mr. Sata ensured the Persons with Disabilities Act of 2012 was enacted immediately he came into power as a promise he made to persons with disabilities.

ii)            Government has quickly put in place a National Policy on Disability and its Implementation Plan.

iii)           Government has re-appointed Disability Focal Point Persons to ensure mainstreaming of disability issues across all government ministries.

iv)           For the first time, government increased the budgetary allocation to the Zambia Agency for Persons with Disabilities by 80% in the 2014 national budget.

v)            The Zambia Agency for Persons with Disabilities is in the process of training the Focal Point Persons on disability mainstreaming.

These are great milestones under the leadership of the late President. Therefore honouring him will be a good service to Zambia. We hope our proposal will be accepted.

May His Soul Rest In Peace

Bruce Chooma

Cc: The Director – Social Welfare

DISABILITY RIGHTS WATCH PROPOSES AMBASSADORIAL AWARD IN HONOUR OF PRESIDENT SATA

We receive the death of our President Mr. Michael Chilufya Sata with great pain and misbelieve. Persons with disabilities will remember the late President for his courage and boldness in dealing with work and development related issues. The President struggled for all Zambians while exhibiting a sense of both humour and seriousness at the same time.

The first thing President Sata did for persons with disabilities when he came into power was to quickly enact the Persons with Disabilities Act of 2012. The Act domesticates the Convention on the Rights of Persons with Disabilities. The government struggled on to develop a National Disability Policy and its Implementation Plan. Government has also developed the National Disability Mainstreaming Plan. All this was under the able hand of Mr. Sata.

For the first time, after close to ten years, the Zambia Agency for Persons with Disabilities received an 80% increase from government in the 2014 budget. In most of his commitments Michael Sata never forgot persons with disabilities.

It is in view of the above that Zambia will be receiving an Ambassadorial Country Award from the Secretariat of the African Decade on Disability, now called the African Disability Alliance (ADA). The Award will be handed over to government on 3^rd December, 2014. 3^rd December is the International Day for Persons with Disabilities. Mr. Sata was to receive the Award on behalf of the Zambians. Today he is gone.

We strongly propose that the Award be a dedication to him. It should be called the “Michael Sata Ambassadorial Award to Zambia”.

May His Soul Rest In Peace

CHALLENGING THE EXERCISE OF LEGAL CAPACITY IN THE ELECTORAL PROCESS

OUR partners The Mental Health Users Network of Zambia MHUNZA have produced a useful and insightful report on the exercise of legal capacity for persons with mental disabilities. They contend that the current legal framework governing the electoral process in Zambia is discriminatory.

The findings of the legal analysis will be made public at a dissemination meeting to be held in Lusaka with the attendance of leading civil society actors on Friday 17th October, 2014.

If the law is explicitly discriminating, why should society not discriminate. The political systems use these laws to establish and mage themselves. In doing so, again, persons with mental disabilities are negatively affected.

 It is of our view that the laws have got discrepancies. If the Constitution and the Electoral Act equate a person “of unsound mind” to a Person with a Disability, then the law contradicts the Persons with Disabilities Act because the Act of 2012 clearly promotes the rights of persons with mental disabilities.

 We shall publish the full report here at the end of the week. 

DRW embarks on Strategic Advocacy Capacity Building for Zambian DPOs

The Disability Rights Watch has embarked on a programme to build the capacity of Disabled Persons Organisations DPOs in strategic advocacy and interpretation of the UN Convention on the Rights of Persons with Disabilities.

The first training of trainers was convened in Lusaka from 3-4 October 2014 and had board members and programme managers of DPOs supported by Opportunity Zambia in attendance. The organisations that attended this training are Mental Health Users Network of Zambia, Zambia Association for Parents of Children with Disabilities, The Zambia Association of Employment of Parents of Children with Disabilities and the Archie Hinchcliff Disability Intervention.

Here below is one key presentation made by DRW President Waliuya Wamundila at the training:

  

DISABILITY RIGHTS WATCH

Facipulation

Facipulation! This sounds to be a completely new word. It seems to be combination of two words. These words are ‘facilitation’ and ‘manipulation’. In simple terms it means facilitating while manipulating. A trainer may facilitate a workshop while manipulating the learning process. In many circumstances, people treat the word manipulation negatively. It apparently means twisting information or forcing change on people. We have heard of political manipulation. So, it is important to ensure that we as facilitators of training sessions remove this negative connotation. When people say they have been manipulated they geel abused or badly treated and cheated. In life we need to manipulate something in order to resolve certain situations.

For instance, a physiotherapist need to manipulate some muscles in some ailing parts of the body in order to remove pain or strengthen the muscles. This is good manipulation. During the process of facilitating learning in a workshop, manipulation is used positively. The learning process is positively manipulated to re-enforce particular thinking. This form of manipulating is more of mental than the physical one done by the physiotherapist.

Some scholars have indicated that most facilitators of personal or organisational development would not like to be described as manipulative. They’d describe their “facilitation” as a process of helping people to help themselves, to reach a goal, to identify a path and indeed to achieve something either set out clearly at the start, or discovered along the way. Facilitators make the path easier, they help people get to where they want to go, or to identify the want in the first place. Some facilitators will be more convergent in style working with a clearly laid out target, goal, and even route to get there. Others will be emergent. They allow the learning to shape itself as they go along.

A physiotherapist is a manipulator. Due to trust from their clients, they are allowed to manipulate for the purpose of good. The client will not treat this as manipulation. In facilitating learning, the facilitator goes into the same relationship. When necessary, they will have to manipulate the process in order to achieve their learning goal.
In my training experience, I have done a lot of manipulation in order to shift the thinking of people. My experience is in facilitation learning workshops for persons with different disabilities including children. Just imagine facilitating a workshop with all categories of disabilities, including those with intellectual disabilities. It takes mental manipulation to achieve your goal. A facilitator should be able to change methodologies to fit the prevailing situation without the participants knowing what is happening. Participants move with the facilitator because they trust his/her skills. Good manipulators tend to be good facilitators. So, they are good facipulators.

Just imagine you are facilitating a workshop for participants who feel they are more skilled than you in facilitating. The based is to manipulate them positively. Use new manipulating methodologies they may not experienced. Most facilitators like group work for their workshops. Well! It is good but add more flavor to it. When training persons with disabilities, most especially children, a facilitator simply needs to be a manipulator. In certain circumstances individualized manipulation is necessary to enhance the learning process.

We can now see what facipulation is. It is manipulative facilitation of a learning process with the aim of achieving the goal the facilitator has set to achieve. In many circumstances, the participants do not even realise that they are being manipulated. The facilitator asks the participants to get to do things he has planned to have them do. In facipulation, it is assumed that the participants have allowed the facilitator to help them to a better level in terms of learning or development. There is existing trust.

There are some situations in which facipulation tends to be negative in a workshop. Some of the circumstances are as follows:

      When the facilitator is in a conflict of interest with those who have hired him/her or with the rest of the participants. This comes when the facilitator has interest in the agenda of the organisation he/she is hired to work for.

      When the facilitator is not confident enough to manipulate emerging circumstances. The facilitator pre-determines the games, group work and other methods and fails to adapt when things change. They tend to manipulate the workshop to fit into their plans.

      When the facilitator wants to manipulate the workshop to meet their needs rather than those of the participants. Some scholars say that people who are formerly pure managers of faculty consultants always tend to be rigid and conduct the sessions like a choir.

      When the facilitator is insecure and keeps a distance from the participants.

      When the facilitator is naturally a manipulator and bully in their life. They usually tend to push around people and so they will do it with the participants.

      When the facilitator does not know the area/topic very well. They may have been assigned to facilitate on behalf on another person or use rot memory. The workshop becomes very mechanical. They may use power point from beginning to end. They may fail to take questions so they manipulate the process to themselves.

The above circumstances should never happen at all. But they happen!

Facipulation is above asking the right questions at the right time. It is about helping the participants get to where they desire to be in terms of learning and experience. The facilitator coordinates the learning process. Facipulation is an art. It is a delicate blend of facilitation in which there is catalyzing, easing and supporting conversations and actions around issues important to the participants.

At the same time, facipulation involves manipulation in which there is steering conversations by participants towards their established themes and goals, and ensuring that actions and decisions made by the participants support their interests. It should not be towards the interests of the facilitator.
When planning a workshop ensure that you study the list of participants and check whether there are some whom you know are difficult. Make specific plans for them to be easily manipulated. Prepare good snacks, T-shirts, pens, notebooks and make all the participants feel at home and want to be invited to another workshop in future.

Assign people to groups ahead of time, and plant someone who knows exactly what you want to achieve in each group. Talk to those whom you have planted and tell them that you have chosen them to assist you facilitate the process. Never put the difficult people in the same group. Engeneer the group work questions in such a way that you get what you want. Never give enough time for the groups to complete their work. They may never complete.

Call for feedback and ask the participants on how they want to do their presentations. Allow one group at a time. Allow questions and comments. Do not comment a lot. After they have presented tell them what you exactly expected them to present. Lead them to agree with you.

Wamundila Waliuya.

October, 2014.

KILLING OF A PERSON WITH A MENTAL DISABILITY IN MONGU

Our partners the Mental Health Users Network of Zambia has issued this important statement:

October 6, 2014

PRESS STATEMENT

For Immediate Release

RE: THE KILLING OF A MENTAL HEALTH USER IN MONGU

The Mental Health Users Network of Zambia MHUNZA is concerned at the reported death of a person with a mental disability at the hands of another mental health user in a public mental health unit in Mongu, Western Province of Zambia.

MHUNZA is appealing to the relevant authorities to thoroughly and quickly investigate this issue to ascertain the circumstances under which the death occurred.

The killing of a mental health patient by another patient whilst in a government run health institution is a stark reminder of how badly persons with mental disabilities are neglected in our country. It is even more saddening that this incident has happened at a time when we join the rest of the world in commemorating World Mental Health Day on the 10^th October, 2014.

We would love to convey our heartfelt condolences to the family of the deceased. We know how it feels to lose a loved one. This is the reason why MHUNZA is lobbying for the new Mental Health Bill to be passed in Parliament to repeal the current archaic Mental Health Act of 1951.

It is regrettable that a life was lost because of lack of care and inadequate human resource to provide mental health services in the public health system. What happened in Mongu is a violation of the rights and inherent dignity of persons with mental health disabilities and is only a tip of the iceberg in as far as the challenge of mental health management is concerned in Zambia. We must all work together to put an end to this.

A few weeks ago MHUNZA working with the Ministry of Health and the Mental Disability Advocacy Centre launched a report of a human rights investigation done on mental health facilities and services in Zambia. The report documents the challenges that confront the management of mental health services in Zambia which results in incidents like these. The report reveals the degrading conditions and treatment that persons with mental health issues face in Zambia. We appeal to government to upgrade all mental health facilities and support community based rehabilitation services.

Zambia is a signatory to the UN Convention on the Rights of Persons with Disabilities UNCRPD which provides for the protection of the rights of persons with mental disabilities. It is therefore important that in line with international standards Zambia should ensure the availability of community based support services and mental health services at primary level with adequate and trained mental health personnel.

Issued by:

Mulima Kasote

Acting National Coordinator

Phone: +260975403524

Human rights and mental health in Zambia: Recommendations for Action

The report “Human rights and mental health in Zambia” is the outcome of a three-year investigation conducted by the Mental Disability Advocacy Center (MDAC) and the Mental Health Users Network of Zambia (MHUNZA). It is the first such investigation based on international human rights standards in the country, and the report can be downloaded at www.mdac.org/zambia.
The report documents the testimonies of over 100 people with mental health issues and their family members around the country and lays out findings from human rights monitoring in five psychiatric facilities, including the only national tertiary care psychiatric facility, Chainama Hills Hospital.
Key findings
Zambia ratified the UN Convention on the Rights of Persons with Disabilities in 2010, thereby committing to upholding the rights of all people with disabilities, including people with mental health issues. However MDAC and MHUNZA found that abuse and ill-treatment against people with mental health issues are widespread and based on stigma and discrimination. The Mental Disorders Act 1951 entrenches state discrimination against people with mental health issues and is in urgent need of repeal. The report documents serious human rights violations in the community, in traditional healing settings, in conventional psychiatric facilities, and in respect of the justice system. 

Families bear the brunt of caring for their relatives with mental health issues with very little support, but this can also result in abuse in the home without any investigation.

Community-based mental health services were found to be virtually non-existent, particularly in rural communities.

Traditional healers operated across the country. While some people said traditional healers could be helpful, reports were uncovered of abusive practices including financial exploitation. The President of the Traditional Health Practitioners’ Association of Zambia raised concerns that almost half of registered traditional healers were ‘quacks’.
Serious overcrowding was evident on psychiatric wards visited, where people were warehoused in dilapidated and unhygienic conditions.  There was no access to therapy neither on psychiatric wards nor in the ‘mental health settlement’ visited. Only Chainama Hills Hospital offered minimal and insufficient occupational therapy to a minority of people there.  Seclusion rooms and high doses of strong psychiatric drugs were found to be default options of mental health practitioners. These practices are harmful and do not help with a person’s recovery.   The Mental Disorders Act 1951 allows for prolonged and unlawful detention.
Developing recommendations
On 6 August 2014, the Mental Disability Advocacy Center (MDAC), Mental Health Users Network of Zambia (MHUNZA) and the Zambia Federation of Disability Organisations (ZAFOD) presented the findings from the “Human rights and mental health in Zambia” report in Lusaka. A wide range of people who are influenced by and can influence mental health law in Zambia discussed the findings.1
Participants jointly developed a set of recommendations to tackle abuses. Recognising that systemic action is required, the event brought together key stakeholders from across civil society and government. 
Recommendations
Participants at the roundtable developed recommendations which they agreed to contribute to implementing, within the competences of their organisations. The Zambian government should:
1. Repeal the Mental Disorders Act 1951, and enact new legislation which harmonises Zambian law with the standards set out of the UN Convention on the Rights of Persons with Disabilities (CRPD), particularly in relation to the provision of community-based services, and providing access to health services on the basis of informed consent on an equal basis with others.

2. Ratify the Optional Protocol to the United Nations Convention against Torture, and take action to establish systemic independent monitoring of all places where people may be deprived of their liberty, including psychiatric hospitals.

3. Designate the Zambian Human Rights Commission as the independent monitoring body required by Article 33 of the CRPD, and establish systemic monitoring of all services and facilities for people with mental health issues.

4. Closely involve civil society, and specifically people with mental health issues and their representative organisations in ongoing law and policy reform, as set out in Article 4(3) of the CRPD. 5. Collect and publicise disaggregated data on the rights of people with mental health issues and use this to develop human rights compliant services, as set out in Article 31 of the CRPD.
In addition to these recommendations, participants at the consultation event also called on the government to take measurable steps to advance the rights of people with mental health issues.
The right to independent living in the community
1. Develop a plan for the roll-out of community-based support services with the purpose of ensuring the inclusion of people with mental health issues into their communities, ensuring their right to live independently in line with Article 19 of the CRPD. This should be based on a multidisciplinary approach across government and service providers. 2. Adapt social welfare and protection programmes to be inclusive of people with mental health issues. 3. Introduce psychosocial counselling and support for families and other care-givers of people with mental health issues. 4. Increase income-generating and community empowerment programmes for people with mental health issues to break the cycle of poverty and discrimination. 5. Ensure availability and access to mental healthcare services at the primary healthcare level which specifically address the rights and needs of people with mental health issues.
1. Ensure that all allegations of abuse and ill-treatment against people with mental health issues are promptly and effectively investigated, whether the abuse is alleged to have taken place in the community, traditional health settings, psychiatric facilities or within the justice system. 2. Strengthen the referral system to investigate human rights violations in the community with the participation of community members. This should include developing awareness of third party referrals to the Human Rights Commission. 3. Develop and roll out a training programme for police and other professionals in the criminal justice system on the human rights of people with mental health issues. This should include neighborhood or village watch committees who can minimise abuse. 4. Ensure that the Traditional Healers Bill is enacted into law promptly, and thereafter take enforcement action against abusive traditional healers who practice without certification. 5. With the participation of people with mental health issues, develop professional guidelines for medical and nursing personnel on minimising seclusion and restraint in psychiatric facilities. Where seclusion or restraints are used, ensure there are accessible and effective accountability, appeals and redress mechanisms. This should be conducted in a reasonable timeframe with the ultimate aim of ending the use of seclusion and restraints.  6. Abolish “detention at His Excellency’s Pleasure (HEPs)” in the criminal justice system for people with mental health issues. 7. Harmonise all criminal legislation with the requirements of the Persons with Disabilities Act and the UN Convention on the Rights of Persons with Disabilities. 8. Promote alternatives to retributive justice through strengthening informal/restorative justice systems. Encourage the judiciary to use restorative justice wherever possible.  9. Ensure that disaggregated statistics about the rights of people with disabilities in the criminal justice system are collected and made available. 
Capacity building and awareness-raising
1. Ensure that people with mental health issues are provided with information in accessible languages to increase their understanding of their human rights.

2. Roll out education, advocacy and sensitisation programmes in communities across Zambia based on human rights standards to challenge myths about mental illness, lead by people with mental health issues themselves. This should include training for community leaders, traditional healers, families and carers.

3. Introduce and support the development of peer-support groups for people with mental health issues in their communities.

 4. Facilitate collaboration and dialogue between traditional practitioners, conventional medicine practitioners and people with mental health issues.

 5. Roll out a compulsory training programme for all medical, nursing and social work staff on mental health issues and human rights standards.

 6. Put in place education and awareness raising programmes for policy makers across government on human rights and mental health.

 7. Roll out training for professionals who work in the criminal justice system on human rights. 
Legislative reform
1. Establish a legal framework for the regulation of traditional health practitioners which incorporates human rights standards, including the right to freedom from torture, exploitation, abuse and violence. 2. Carry out research into mental health detention orders, their use and misuse, and develop a policy of reform based on evidence collected.  3. Coordinate and monitor human rights standards across government for people with mental health issues across the justice system (as per Article 33(1) of the CRPD). 
Health services
1. Ensure all treatment provided to people with mental health issues is based on the principle of free and informed consent, whether this takes place in psychiatric facilities or traditional healing settings. 2. Establish mental health services within primary healthcare and community support programmes, and provide training to all general healthcare professionals on mental health and human rights.

 3. Develop a national referral process between traditional and conventional medicine practitioners. 4. Ensure that each district hospital provides mental health services to the community and ensure that services are not solely pharmacological-based.

 5. Ensure that a patients’ rights charter, developed with people with mental health issues, is displayed in all mental health facilities, and translated into local languages. 6. Prosecute medical and nursing professionals who neglect to provide general healthcare to people with mental health issues. 7. Introduce supported decision-making for people with mental health issues to ensure that their will and preferences are respected in healthcare decisions, including mental health treatments. 8. Develop advance directives to ensure that the will and preferences of people with mental health issues are respected in relation to the care they receive at times of crisis. 9. Ensure that each health facility provides information about rights to patients and family members, and establishes an effective complaints mechanism.